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repository.diabetesaction.ca/d2sl
647-355-1939
data2savelives@utoronto.ca
500 University Avenue 5th Floor, Toronto, ON M5G 1V7 
YOU CANNOT IMPROVE WHAT YOU DO NOT MEASURE

#Data2SavesLives is an initiative co-led by Diabetes Action Canada and UTOPIAN to raise awareness and importance of e-health in leading improved health outcomes through secure Electronic Medical Record (EMR) data contribution. 

EMR data collected as a part of routine care can be used for quality improvement, research, disease surveillance, and more. This data can be collected in a secure way that is de-identified to create a database of health data.   

The UTOPIAN Data Safe Haven is a secure database of de-identified EMR data extracted from primary care practices in Southern and Northern Ontario. To learn more about the database, click here.

 

 

We would like to invite you to join over 400 Family Physicians that contribute EMR data to the University of Toronto Practice Based Research Network (UTOPIAN)’s EMR Data Safe Haven.  We collect EMR data on care as it is managed in our practices.
Click here to Join UTOPIAN
Health Data in Action

Health data collected can be used for research, quality improvement, secondary data analysis and more. Here are some examples of how research teams and using the secure de-identified UTOPIAN database to answer important questions in primary care:

  • End-Digit Preference – an observation of Blood Pressure

Researchers from North York General Hospital and the University of Toronto, Department of Family and Community Medicine found variation in blood pressure recorded with a manual manometer and a digital blood pressure monitor. There was a preference for rounding up the last digit of blood pressure recorded using a manual device, whereas the digital measurement was accurately recorded. 

  • Data Presentation Tool – quality improvement

The Data Presentation Tool (DPT) is a unique online tool which allows physicians and family practice clinics to answer clinical questions regarding their patient population. The DPT uses the cleaned, coded, and standardized data which belongs in the UOPIAN Data Safe Haven allowing physicians to search their patient database in a de-identified manner. This is extremely useful when trying to evaluate trends in practice and improve the delivery of care. For example, a physician may want to know how many of their patients with type 2 diabetes are receiving appropriate care according to Ministry guidelines. The physicians can then identify patients not receiving complete care, and improve the care provided for those patients.

 

Data Privacy & Security

Privacy and Security have been paramount in scoping the requirements for the Repository and UTOPIAN’s Data Safe Haven. Rigorous privacy practices have been embedded into their foundation and have been incorporated into all policies and procedures. This allows us to provide access to researchers without compromising data security.

The physical hardware is located at the PHIPA-compliant Centre for Advanced Computing (CAC) at Queen’s University.  The CAC is aligned to ISO-27002 information security standards to implement controls regarding the safeguarding of data.

With physician consent, data is forwarded to Diabetes Action Canada to be housed in the National Diabetes Repository. This data, is de-identified and it only accessible in the Secure Analytic Virtual Environment.  Please click here to find out more.  

 

 

 

 

 

 

UTOPIAN – University of Toronto Practice-Based Network

DAC – Diabetes Action Canada

repository.diabetesaction.ca/d2sl | data2savelives@utoronto.ca | 647-355-1939 | 500 University Avenue 5th Floor, Toronto ON M5G 1V7

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


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