National Diabetes Repository

Welcome to Diabetes Action Canada's National Diabetes Repository.  A scalable and sustainable multi-jurisdictional diabetes data repository and secure analytical virtual environment.

Diabetes Action Canada has developed a National Diabetes Repository to help monitor and prevent complications arising from diabetes. Through enhanced informatics, this repository will apply privacy-aware methods to safely contain and link data (primary care EMR, retinopathy, patient reported experiences, and clinical trial data) and make it available to approved investigators for secondary research purposes.

Data Privacy & Security

Privacy and Security have been paramount in scoping the requirements for the Repository. Rigorous privacy practices have been embedded into the foundation of the Repository and have been incorporated into all our policies and procedures. This allows us to provide access to researchers without compromising data security.

The physical hardware is located at the PHIPA-compliant Centre for Advanced Computing (CAC) at Queen's University.  The CAC is aligned to ISO-27002 information security standards to implement controls regarding the safeguarding of data.

DATA SECURITY
Compliant to ISO 27002 standards and PHIPA.  

https://cac.queensu.ca/overview/

GOVERNANCE
Oversight over the use of the data through a robust Research Governing Committee where 50% of the members are patients.

Please click here for the RGC Framework

PRIVACY
De-identified and coded individual level data. Privacy-by-Design framework.

REB Approved Project specific datasets.

Research Environment
Secure Analytic Virtual Environment provides SPSS, R Studio and Python.

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